Wednesday, 15 April 2009


Moving quickly towards better treatment

At its meeting in Paris in March, the SIOPEN Board approved a new protocol drawn up jointly by European and US representatives of the study group looking at improved treatments for Adolescent and Young Adult neuroblastoma patients. This is a major step forward towards a clinical trial which will have the impressive target of improving the event-free survival rate at 5 years by 30% within this age group, where currently, it is close to zero.

Adam's Hats was instrumental in encouraging agreement at the Paris meeting, that within the detailed clinical trial proposal, and given the heavy burden of high doses of chemo- and radio-therapy required to attack the disease, including repeated components demanding that the patient is in isolation, there should be a requirement for psychosocial support to be available to patients. The Board also agreed that the growing body of evidence connecting appropriate environments for this age group, with improved quality of life during cancer treatment, should be included in the detailed proposal.

Let's get ready to support this project as it moves into its detailed planning stage, by sponsoring our runners in the upcoming BUPA London Run this May!



BUPA London 10K Run - Bank Holiday Monday 25 May 09

Adam's Hats has no less than 6 family and friends running for us in this run through London on Bank Holiday Monday 25 May.

The Finn Harriers is a team put together by Adam's uncle, and Adam's Hats Trustee, Richard Finn, (see and Joe Pose (see is married to one of Adam's very first nursery carers. All long-term supporters of our quest for better outcomes for children with neuroblastoma.

As we move into a critical stage of the research we sponsor, the Adolescent and Young Adult project, please help our courageous runners reach their targets by gong to their JustGiving pages, and come and watch the run!